Yesterday, the Medical Supply company came and took out the bed we had put in the Dining Room for Ciera. It was a rental, and we hadn't been using it for some time anyway.
After everyone went to bed, I was putting the table back together, and it was strange. I would have thought it should be a good time, getting our dining room back. But somehow, it was a very melancholy feeling.
I'm not sure why. I think it's because it is supposed to be a sign that things are getting back to normal, but are they? Yes, Ciera is sleeping back in her old bed. But she's not "back", and who knows if she ever will be?
She's doing great, for someone who had a stroke and then brain surgery. She's happy, eating like a horse, and always wanting to move around and play. But the left side weakness hasn't really improved in a while. She can use her left hand, but often forgets about it and we have to remind her to (or make her) use it. When she's not using it, the tightening up of her muscles is causing her arm to curl up, looking kind of like a dog's front leg when he is sitting up and begging.
Her left leg is ok, but definitely weaker than her right. She can use her gait trainer, which is awesome, but her left foot always drags when she is being picked up or moved around, and when she climbs up on something she sometimes can't get that left leg up without help.
I knew this could happen, and in fact was likely. It's really only been about 3 months or so, and we have been told it could take 6 months to a year to get everything back (if ever). I just can't help wishing things were different. I have long been used to her "normal" due to the Zellweger Syndrome, but this is different, and will take it's own getting used to.
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